Monday, July 28, 2008
What is that you ask?
Oh, yes, that was the stay where they told us Lukas DIDN'T HAVE CANCER ANYMORE!!!
Loading up on antibiotics and playing like a rambunctious little boy! (Notice the blue under his chin? It was a wrap to hold his needle in place. His port was infected so it itched really bad and he kept pulling at the needle.)
"Ock, ock!" That's Lukas for rock.
Port was finally removed and we started the game of Peripheral IV's... The game part was finding a good vein that wouldn't collapse. The next few pics all feature a different PIV.
Yes, Lukas likes to get his own vitals, thank you very much. He can do it all, blood pressure, temp, pulse/ox, and he can use the stethescope like any trained professional
Calling in a rescue card... No one came.
Theron paparazzi shy. All 12 tries and 8 PIV's later, we had to insert a PICC line. Went into his exterior jugular on the right side of his neck and then the "noodle" was looped over his ear and secured with a BUNCH of tape. He had to be sedated in PICU to have this inserted and I got to go down after it was in. Let me tell you, Lukas is the funniest drunk baby! He had just "woken up" from the anesthesia and was babbling, calling Nana, wanting a ball and trying to flop all over the place. He had a room full of nurses taking in the show! We actually got to see our PICU nurse from after Lukas surgery back in March. She was amazed at how far he's come in such a short time.
Lukas sharing his Bink with Uncle Bud... Man he's a whitey!
Theron rockin out to Guitar Hero. That kid is a guitar junkie!
Lukas took the drum sticks from another kid and started dancing and beating the drum pads. It was really cute!
Thursday, July 17, 2008
Anyway, we waited for our turn and when it was time Theron walked right over to the stool, moved it in front of the stand, Ryan lowered the microphone and Theron climbed up. He pulled the mic down and said, really loudly, "Hi guys" and then froze up and wanted to get down!
Tuesday, July 15, 2008
These first few are from our camping trip to Ray Roberts with the Curriers. We decided we needed to get away one weekend before Lukas next round of chemo
Next is Theron reading a book to Lukas one night, man, he is such a GOOD big brother! I'm so proud of how well he's held up these last few months!
And then Theron's first time playing in the rain! He LOVED IT! I wanted to get out there with him, but I was having too much fun taking pics and seeing the look on his face when I actually told him to go play and get wet!
Monday, July 14, 2008
Like my new header and background? Pics were done by the talented Melissa Fullmer... Thanks Melissa for doing these for us, we are almost ready to get some more of the new and improved Lukas who just so happens to be CANCER FREE!!!!!!
Man, I just can't say that enough.... Lukas doesn't have cancer!!!!
Anyway, I promise I really will have pictures up eventually... Just haven't downloaded them yet. But soon! I PROMISE!
For now, I'll leave you with an update, Lukas goes in Friday to get his new port put in, yes he's done with chemo but he is still getting his IVIG and for those of you that don't know, he's been through close to 16 tries and 7 successful IV's in the last 3 weeks, so we very much need a port put back in. Then we don't have another clinic until AUGUST 7th!!! So weird!
So, you can always check back on Lukas caringbridge site for updates or to read his story.
Peace out homies! I'm going to eat some more steak!
Sunday, July 6, 2008
Yes, you read that right. His latest Bone, CT and MIBG show NO EVIDENCE OF DISEASE!!!!
He is in remission, he is NED!!! WOOOHOOO
We've been celebrating (and doing a lot of catch up sleeping) the last few days. Pictures to follow when I get them uploaded....