Sometimes they are nice. I feel like I get some down time, other long nights though, those wonderful old thoughts creep in. The little girl that did radiation with Lukas was done with her treatment in February. She just had emergency surgery Friday because of bleeding on her brain. The culprit? A new NB tumor in her brain. Why does this have to happen? When will it all end? I'll forever be left to wonder what is going on in Lukas little body. Will something new show up on scans? Will he be in full remission forever? What happens if it does come back? Right now it's pretty much a death sentence for NB to come back.
I just don't understand it. I know Lukas chances of full remission are so high, but there is always the possibility for it to come back, no matter how slim it might be for him.
We have to do something about this. We have to let people know babies are DYING more than they are living because of Neuroblastoma! People need to know it's happening. We've got to get more funding for this stupid, hateful, deadly cancer that is killing our babies and toddlers! I'm sorry for all of these sad posts, but this is a reality. This is the world my family lives in now. It's uncertain and full of worry and what-if's. That is what my long nights are made of.
1 comment:
you are so strong, i admire you so much! I really hope he keeps on getting better and better everyday but it is impossible not to worry. you guys are in our prayers
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