Tuesday, April 29, 2008

A week of fun and good days!

Ok, so here are some random pictures.

Lukas looking great!
My sweet little fighter!
John, here are your new ad campaigns!
Lukas loved your new creation! Cheesy bread pizza. (Pizzaiolo's pizza! Delicous)

We had to by the Baby Mederma to put on Lukas scar. It was $20 for .7oz of the stuff!!! This is Lukas after Theron put $15 dollars worth on his head!


So this was one day that Theron was supposed to be taking a nap. His reward for going potty is stickers. The little sneak found a package of Pirates stickers and pulled off all 100 of them and put them all over himself and me. I was laughing to hard to be mad at him!





Charles turned 20 on April 29th. Crazy! He wanted to go to the park before his birthday dinner at Trail Dust and the boys and I were completely fine with that! Suzie and Will came to the park too. Theron loves Suzie (Charles feels a little threatened by this). Any time we say we are going to see Charles, he says "And Suzie!!". So cute! Lukas started moving in on her during dinner... Sorry Charles, my boys are just that cute!









Saturday, April 26, 2008

No more tears in Heaven...

Our little friend John Eric (carepages: johnericbartels) is losing his fight with Neuroblastoma. He made it all the way through his first rounds of treatment (the high risk protocol w/transplant) only to find his cancer had come back in the primary tumor spot. His parents have decided that after trying their last options of experimental chemo and that not working and causing more pain, that they are choosing quality of quantity of life. They are meeting with hospice today and also setting up... I can't even say it.... They are making decisions today that no parent should ever have to make for their child. The children should be the ones planning this for their parents that have lived long and happy lives.

I have never met John Eric or his family, but I'm connected to them now through this stupid, nasty, hateful diseas we call Neuroblastoma. I hate it. I'm heartbroken for the Bartel family. It hurts to have to read that.

I know these aren't the posts you all want to read, but if you can please go to John Eric's carepage and leave his family words of encouragement, or at least pray for peace, understanding and soon comfort.

Thursday, April 24, 2008

1st Annual NB Walk...a SUCCESS!!!!


The first walk, put together by some super loving people and it was HUGE success in my opinion!


They were able to raise just over TWENTY THOUSAND DOLLARS!!!!! $20,000!!!! There were about 250 people there and 18 NB families!


I'm just amazed at how well this first year went and I'm super excited to see how much more we can accomplish next year!


Here's us and our reason to walk!


Here's our little fam having a great time and supporting a GREAT cause!


They had orange wedges out for snacks and by the time we got done walking the 3 miles, Theron was starving! He and Coen pretty much walked the whole way! I was so proud of them!

Monday, April 21, 2008

Don't Cry, BEEEE HAPPY!!!

Ok, so I've had some, understandably, sad, depressing posts, so I thought today I should post something HAPPY!!!!!!

Lukas is alive, Kurt's job is going well, I'm in a good mood today, Theron is happily watching Cars.....

Life goes on, and it can be happy if we let it.

:) Here are some pics to put a smile on your face!

I LOVE this smile!


See food?


Theron's Monkey Face


Chocolate, one of the only things we can get Lukas to eat...


Theron LOVES to make Lukas happy!


See...


Lukas loves "Bizzy" his music therapist.

Saturday, April 12, 2008

Cancer Sucks, bad

Social isolation, roller coaster emotions, decisions, decisions without enough information, sleepless nights, horrible-terrible thoughts, upset stomachs....

There really isn't anything good about it. Sam's family has gotten bad news about his latest CT scans... The tumor hasn't shrunk since last time and it has actually split in two places, so he faces a very delicate and dangerous surgery. His parents are forced to decide on the surgeon from here, Houston or NY.

We shouldn't have to face decisions like this. We shouldn't have to be told that the tumor isn't responding to treatment and needs to be removed. We shouldn't have to face the "last ditch effort" surgery. Lukas was lucky with his results. Now Sam and his parents need our prayers. They are now in the shoes Kurt and I were in a few weeks back.

My heart hurts so badly for them, I know the pain and nausea we felt and I can't fix it. I can't help them.

We go through this and gain a whole new family. These people, and these sweet kids become so close to us, we are bonded in a way that nothing could ever break and I just want to fix it for them as badly as I want to fix it for Lukas. I told my mom a few weeks ago that I now have a sickening sense of understanding and an empathy I would never wish on anyone else. It comes from having to personally deal with my baby being sick with a cancer that can't be cured (as of yet). We can treat it, we can even make it go away for a while, sometimes for a long while, but in the process we destroy other functions. Our babies are forced to grow up faster than they should. I only halfway joke when I say Theron is 2 going on 20. Our kids, not only the sick ones, loose a piece of their childhood. They loose some of their confidence and feeling of security as they deal with this. I can't even say the word without shuddering.

Cancer. It's taken Lukas sight, it's taken some babies lives. It's relentless. It takes and takes and takes. It's taken Theron's sense of security and it's taken some of my hope, some of my dreams for Lukas, some of my heart.

The Flemings need our hope and faith and prayers and love and support now more than ever as they have to face this unforgiving beast face to face. They have to make the decision to take Sam into surgery and leave Ben behind for however long it takes for Sam to recover. Linda has to leave one baby behind once again as I know all to well. She'll be seperated from Roger again, from her home and sense of comfort. This road is all to familiar to me, to the other families facing NB. It's a lonely road and a long, dark one. There isn't much more than a flicker of light at the end for some of us, and for others, it's only darkness. It's a true test of faith, of our ability to endure to the end, to be able to let go and give it all up to our Heavenly Father. That's the only way we get by each day, the only way we can enjoy the good days and try and endure the bad. We are given miracles, no matter how small or large, but just enough to remind us that we really aren't alone. We are given other families to bond with, to cry with and laugh with, to turn to when we are at our lowest and need that hand to pull us up.

There is nothing good about cancer, but there is something marvelous and wonderful in our babies, they are true blessings, sent to us from Heaven. Maybe we don't get to have them for long, but it sure does make the time we have with them more sweet.